Accessibility Guidelines for Buildings and Facilities
By: The Access Board
1-800-USA-ABLE (1-800-872-2253) or Email:
info@access-board.com
This document contains scoping and technical requirements
for accessibility to buildings and facilities by individuals
with disabilities under the Americans with Disabilities Act
(ADA) of 1990. Contains illustrations. Revised 1998.
Accessible Building Design
By:
Eastern Paralyzed Veterans Association
75-20 Astoria Blvd, Jackson Heights, NY 11370
800-444-0120
Date: 1991A booklet that presents a hypothetical
accessible building and it's surrounding area. Gives ideal
dimensions of parking spaces, ramps, doorways, elevators,
bathrooms and assembly rooms. Large print available. 38pp.
Cost: Free
Accessible Gardening for Therapeutic Horticulture
By: Jean Larson, Anne Hancheck and Paul Vollmar
Available from: Minnesota Extension Service
Distribution Center
20 Coffey Hall, 1420 Eckles Ave, St Paul, MN 55108
612-625-6281 or Email:
order@extension.umn.edu Describes therapeutic
horticulture and explains how people with physical
limitations can make their gardents accessible using simple
adaptations to the garden area, methods and equipment. 4
page fact sheet. Date: 1997 Cost: 75 cents
($1.50 min order)
Accessible Transit Traveler
Published by:
Eastern
Paralyzed Veterans of America
75-20 Astoria Blvd, Jackson Heights, NY 11370-1177
800-444-0120
Booklet that discusses the ADA and how it affects
transportation requirements. Includes information related to
public transit systems, school transportation, rail
stations, private transportation as well as design standards
for vehicles and fixed facilities.
Cost: Free
Acute Management of Autonomic Dysreflexia:
Adults with Spinal Cord Injury Presenting to Health Care
Facilities
Published by:
Paralyzed
Veterans of America (PVA)
Consortium for Spinal Cord Medicine
Available from: PVA Distribution Center
P.O. Box 753, Waldorf, MD 20604-0753
888-860-7244
Date: February, 1997
Clinical practice guidelines developed for the care
of persons with spinal cord injury who present to health
care facilities with signs of autonomic dysreflexia (hyperreflexia)
Summarizes methodology in establishing guidelines, treatment
recommendations, and treatment overview. Includes glossary
and references. 19 pages.
Cost: $10
ADA: Resource Information Guide
By: Eastern Paralyzed Veterans Association
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
800-444-0120
Date: 1993
A pamphlet that contains a comprehensive bibliography of
books and videotapes about the ADA and the services it
affects. 23pp.
Cost: No cost
ADA: Small Business Fact Sheet
Produced by:
Eastern Paralyzed Veterans Association
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
800-444-0120
Date: 1993
A pamphlet listing the essential accessibility
requirements of the ADA are concisely explained in words,
photos and diagrams. 1 p. Free.
Adaptive Baby Care Equipment: Guidelines, Prototypes &
Resources
By: Kris Vensand, Judith Rogers, Christi Tuleja,
Anitra DeMoss
Available from:
Through the Looking Glass
2198 Sixth St., Suite 100, Berkley, CA 94710
510-848-1112 or 800-644-2666
Date: 2000
This book includes problem-solving baby care barriers;
resources for adaptive baby care equipment, and a checklist
and safety guidelines.
Cost: $30.
Adaptive Parenting Equipment: Idea Book 1
By: Anita DeMoss,MA; Judith Rogers, OTR; Christi
Tuleja, MS,OTR; Megan Kirsbaum, PhD
Available from:
Through the Looking Glass
2198 Sixth St., Suite 100, Berkley, CA 94710
510-848-1112 or 800-644-2666
Date: 1995
This excellent resource, developed by "Through the
Looking Glass" non-profit agency, has adaptive equipment
ideas for a range of baby care, childcare and parenting
activities for parents with a variety of physical
disabilities.
Cost: $10 (consumers), $25 (professionals and general
public)
Adaptive Recreation Equipment Catalog
By: Don Krebs
Access to Recreation
2509 E Thousand Oaks Blvd, Ste 4430, Thousand Oaks, CA 91362
Date: Annual
800-634-4351 Catalog of recreational equipment, including
items such as electronic fishing reels, sports wheelchairs,
lifts for access to a swimming pool and bowling aids. Also
devices to help with embroidery and knitting, games and
books, video controllers and environmental control system.
Advocacy and Supported Employment for People with
Disabilities
By: Michael Barcus, Teri Blankenship, Ed Turner, Paul
Wehman, and Greta Galloway, Editors
Available from: Virginia Commonwealth Univ
RRTC on Workplace Supports
PO Box 842011, Richmond, VA 23284-2011
804-827-0737 or Email:
rsmartin@titan.vcu.edu
Date: 2000
A Guide and Workbook to assist people with disabilities play
an active role in their job search. Included is a training
video, "Today's New Workforce: An untapped labor force"
Cost: $54.99
Air Carrier Access
Produced by:
Eastern Paralyzed Veterans Association
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
800-444-0120 or Email
info@epva.org
Date: 1993
A handy guide that explains the Air Carrier Access Act
and provides information about air travel for wheelchair
users. 29 pages.
Cost: No cost
Air Carrier Access Act - Make It Work For You
By: Paralyzed Veterans of America
Available from: PVA Publications
PO Box 753, Walsdorf, MD 20604-0753
301-932-7834
Provides information about the law, addresses for filing
complaints and a tear-out complaint form. 18 pp brochure.
Date: 1995 rev.
Cost: Free
Alcohol, Drug, and Prescription Medicine use after SCI
By:
Medical
College of Wisconsin Model SCI System
Froedtert Memorial Lutheran Hospital W, Rm 5292
9200 W Wisconsin Ave, Milwaukee, WI 53226
414-259-3659
Date: 1999
This booklet discusses the risks associated with using
these substances either individually or together. It
encourages considering the consequences of use. Includes a
medication worksheet & reference page for tracking
medications used and the effects of alcohol.
Cost: $2
America's Telability Media 2000-2001
By: National Telability Media Center
Available from: PO Box 1488, Columbia MO 65205-1488
573-445-7656
The nation's first disability media directory with more
than 1400 mass media resources serving people with
disabilities.
Cost: $40
Assistive Technology Needs-Assessment of Farmers and
Ranchers with Spinal Cord Injuries, Final Report
By: Breaking New Ground Resource Center
Purdue University
1146 Agricultural Engineering Bldg., West Lafayette, IN
47907-1146
800-825-4264
Date: 1992
Reports findings of a study completed by Breaking New
Ground Resource Center. A survey of farmers and ranchers
with spinal-cord injuries showed their
rehabilitation-technology needs.
Cost: $25
Autonomic Dysreflexia: What you should know
Published by:
Paralyzed
Veterans of America (PVA)
Consortium for Spinal Cord Medicine
Available from: PVA Distribution Center
P.O. Box 753, Waldorf, MD 20604-0753
888-860-7244
Date: September, 1997
A consumer guide for persons with SCI that tells how to
spot AD's warning signs, what to do in case of an AD
episode, and steps to take to prevent AD. Includes a diary,
wallet card and brochure. 14 pages.
Cost: Free
Available in Spanish
Avoiding Attendants from Hell
By: June Price
Available from:
Science and Humanities Press
PO Box 7151, Chesterfield, MO 63006
314-394-4950
A tell-it-like-it-is book on everything that's good, bad and
ugly about personal assistance services. Includes
information on taxes and withholding along with sample
forms.
Cost: $16.95
Date: 1998
Barrier Free Design: The Law
By: Paralyzed Veterans Association of Florida
Published by: PVAF
6200 North Andrews Avenue, Fort Lauderdale, FL 33309
954-771-7822; 800-683-2001; FAX 954-491-3532
Date: 1995
This publication is an easy-to-read reference for
accessibility laws for American National Standards Institute
(ANSI) as compared to the State of Florida accessibility
requirements. Also includes Title II and Title II highlights
of the ADA. Excellent reference for builders, city
officials, architects, interior designers and consumers who
use wheelchairs.
Cost: $35.00
Basic Questions Relating to Chemical Use
By: Sharon Schaschl and Dennis Straw
Sister Kenny Institute
800 East 28th St., Station 49
Minneapolis, MN 55408-3799
612-863-5061
Date: 1991
Fact sheet which outlines questions to be explored
relating to prescribed medications, street drugs and
alcohol.
Cost: No cost
Benefits Management for Working with People with
Disabilities: An Advocate's Manual
By: Lopez-Soto EJ, Sheldon Jr.
Available from: Greater Upstate Law Project, Inc.
80 St. Paul St, Suite 660, Rochester, NY 14604
716-454-6500
Date: 2000
A comprehensive reference book on the aspects of how work
affects a person's right so Social Security, SSI, Medicaid
and Medicare. Covers latest laws, regulations and policies.
174 pp.
Best 25 Catalog Resources for Making Life Easier
Making Life Easier
933 Chapel Hill Rd, Madison, WI 53711
608-274-4380; Fax: 608-274-6993
Email:
help@MakingLifeEasier.com
A listing of 25 mail order companies that offer a wide
array of helpful and often difficult-to-find products
designed to make daily tasks easier, safer, and less
frustrating.
Beyond Barriers
Available from: Blair Ferguson
800-561-2223
A catalog that lists hundreds of accessibility products.
Features seven product categories: bathroom, kitchen,
universal home, outdoor, leisure and fitness, pediatrics,
and daily living aids.
127 pages
Brain and Spinal Cord Tumors--Hope Through Research
By: National Institute of Neurological Disorders and
Stroke (NINDS)
National Institute of Health, Bethesda, MD 20892
Date: 1997
A pamphlet that discusses brain and spinal cord tumors,
their causes, symptoms, how they are diagnosed, and
treatment methods. Reviews research being done in this area
and resources available.
Building for a Lifetime
By: Margaret Wylde
Publisher: Taunton Press
Available from:
Amazon.com
From the publishers of Fine Homebuilding magazine, this
book is about building houses that meet peoples's needs
throughout their lives. While targeted to the builder and
designer it is suited to the homeownere looking for ideas
and solutions for inclusive design. 1994
ISBN 1561580368
Cost: $35.96
Care Packages: Letters to Christopher Reeve from
Strangers and Other Friends
By: Dana Reeve
Date: Nov, 1999
Publisher: Random House (ISBN #0375500766)
A selection of mail received by Christopher Reeve after his
SCI, arranged by themes, such as, overcoming adversity,
cures & recommendations.
Caregiver's Handbook
Produced by: Caregiver Education & Support Services
San Diego County Mental Health Services, CA
619-692-8702
Editor: Robert Torres-Stanovik, LCSW
Date: 1990
A general guide for caregivers that discusses caring for the
caregiver, providing personal care, nutrition, emotional
well-being and legal/financial affairs.
Case Management Resource Guide
Distributed by: Center for Healthcare Information
Phone: 714-752-2335 or Email:
cmrg@cmrg.com
Date: 1997
Case Management Resource Guide is a unique print and
electronic healthcare directory. The Resource Guide contains
over 120,000 entries covering over 40 categories of
healthcare services and products including: Homecare
services, Rehabilitation services, Long-term care services,
Assisted living facilities, Pharmaceutical companies; and
Manufacturers of homecare & assistive technology products.
(High) Chairs and Children
By: Sandie Waddell
Available from: S. Waddell, Education Resource Center
P.O. Box 1813
Whangarei, New Zealand
Date: 1992
Deals with pregnancy, childbirth, and aftercare for women
with spinal cord injury. Written from personal experiences.
Cost: $10.00 US+s/h ($6.00)
Characteristics of Spinal Cord Injury and the Effects of
Drug/Alcohol Use
By: Sharon Schaschl and Dennis Straw
Sister Kenny Institute
800 East 28th St., Station 49, Minneapolis, MN 55408-3799
612-863-5061
Date: 1991
Fact sheet which addresses the sociological and
psychological effects on a person with spinal cord injury
who abuses drugs/alcohol.
Cost: No cost
Chartbook on Women and Disability in the United States
Prepared by: Lita Jans, PhD & Susan Stoddard, PhD
Available from: InfoUse
2560 Ninth Street, Suite 216, Berkeley, CA 94710-2566
510-549-6520 or E-mail: info_use@infouse.com
A reference book on women and disability in the US
population. The book is a resource for agencies, employers,
organizations, policymakers, researchers and others
concerned with the relationship between gender and
disability. Includes charts. 1999.
Checklist for Evaluating Personal Assistance Services
By: Connie Lyle O'Brien and John O'Brien
Available from: The Center on Human Policy - Syracuse
University
200 Huntington Hall, 2nd floor, Syracuse, NY 13244-2340
315-443-3851
Date: 1993
An information packet that provides information on how to
evaluate an individual or service that provides personal
care assistance. Looks at characteristics such as
availability, comprehensiveness and participant control. 10
pp,
Cost: $2
The Child with Spinal Cord Injury
1996
By: AAOS & Shriners Hospitals for Crippled Children
Edited By: Randal R. Betz, MD, M.J. Mulcahey, MS,
OTR/L
Available from: American Academy of Orthopaedic
Surgeons
PO Box 75838, Chicago, IL 60675-5838
800-626-6726
This publication is the newest addition to the AAOS
Symposium Series, developed jointly with the Shriners
Hospitals for Crippled Children. It offers a complete,
up-to-date overview of the clinical issues surrounding
pediatric spinal cord injuries-etiology and demographics,
prevention, treatment, rehabilitation, and areas where
further research is needed. (880 pages)
Cost: $95.00
Choosing a Wheelchair
By: Gary Karp
Available from:
O'Reilly Online Catalog
Date: July, 1998 - ISBN#: 1-56592-411-8
This book describes technology, options, and the selection
process to help identify the chair that can provide optimal
independence. Cost: $9.95, 190 pages.
Clinical Practice Guideline: Autonomic Dysreflexia
Published by: American Association of Spinal Cord
Injury Nurses
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
Phone: 718-803-3782
Date: 1996
Describes the condition, clinical components of the
guideline for management, the guideline-development process,
and references.
Cost: $10.00 including shipping; prepaid orders
only.
Compendium of Spinal Cord Injury Educational Resources
Available from: TIRR, Div of Education
1333 Moursund, D-112, Houston TX 77030
713-797-5947 or Email to:
Pam Cornell
The National Database of Educational Resources on SCI
contains approximately 500 specialized educational materials
relating to spinal cord injury, including both audiovisual
and written materials. To request a search, call or write
and specify the subject area you want investigated. A
printed report is mailed to you.
This print copy of the entire holdings is available for $50.
Computer and Web Resources for People With Disabilities :
A Guide to Exploring Today's Assistive Technology -
3rd Edition, 2000
By: Alliance for Technology Access and Stephen
Hawking
Publisher: Hunter House
Available from:
Amazon.com
This newly expanded book describes how to make use of
conventional and assistive technologies, and explains how to
determine needs. An indispensable resource guide, it lists
funding sources, government programs, publications, and
technology vendors.
336 pages, ISBN 0897933001
Cost: $16.76
Computer Resources for the Disabled
Distributed by: Twin Peaks Press
PO Box 129, Vancouver, WA 9866
Phone: 360-696-3210
A book that lists souces to help one acquire, finance,
fund and use computers. Many other computer resouces for the
disabled are included.
Cost: $19.95 plus $3.50 s/h
Conditioning with Physical Disabilities
By: Lockette and Keyes
Published by: Rehabilitation Institute of Chicago
Education and Training Dissemination, 345 East Superior
Street, Chicago, IL 60611
Phone: 312-908-6000
Date: 1995
Introduction
This book provides easy and safe exercises for people
with all levels and classifications of physical
disabilities. It contains step-by-step descriptions and more
than 250 illustrations/pictures. Intended audience:
Consumers, families, healthcare professionals.
Cost: $22.95+ $3.00 postage and handling
Consumers Guide to Disability Rights Laws
By: US Dept of Justice
Distributed by: Consumer Information Center
Pueblo, CO 81009
202-501-1794
A booklet that includes information on the ADA, the Fair
Housing Act, Air Carrier Access Act, the Civil Rights of
Institutionalized Persons Act, Individuals with Disabilities
Education Act, the Rehabiliation Act, Architectural Barriers
Act and other sources of disability rights information.
Date: October, 1996
Cost: Free
Core Curriculum for Educating Nurses in Spinal Cord
Injury
By: Cynthia Kraft Fine
Magee Rehabilitation Hospital
6 Franklin Place, Philadelphia, PA 19102
215-587-3189
Date: 1991
Presents information to orient nursing staff to the
appropriate management of the spinal cord injured patient in
rehabilitation and in follow-up.
Cost: Contact Magee Hospital
Depression Following Spinal Cord Injury: A Clinical
Practice Guideline for Primary Care Physicians
Published by:
Paralyzed
Veterans of America (PVA)
Consortium for Spinal Cord Medicine
Available from: PVA Distribution Center
P.O. Box 753, Waldorf, MD 20604-0753
888-860-7244
Date: August, 1998
Clinical practice guidelines discuss the assessment,
diagnosis and treatment of depression in people with SCI.
This covers complexity of biological, psychological and
social factors that are unique to these individuals.
Designed for use by primary care physicians. Includes
references. 33 pages.
Cost: $10
Directory of Accessible Van Rentals
By: Helen Hecker, RN
Distributed by: The Disability Bookshop
PO Box 129, Vancouver, WA 98666-0129
360-694-2462
A directory listing accessible van rentals that are
lift-equipped, or have features as raised roofs, wheelchair
tie-downs, and safety harnesses for passengers. Includes
companies in the US and abroad.
Date: 1997
Cost: $9.95 plus $3.50 s/h
Disability Bookshop Catalog
By: Helen Hecker, RN
Distributed by: Twin Peaks Press
PO Box 129, Vancouver, WA 98666-0129
Phone: 360-694-2462
A shop-by-mail bookstore. Stocks hard-to-find titles
covering a wide range of health topics for the public on
matters of interest to persons with disabilities.
Date: 1997
Cost: $4
Disability Etiquette
1997
By: Judy Cohen, Access Resources
Available from
Eastern
Paralyzed Veterans Association
800-444-0120
Provides pointers on how to relate to people with various
disabilities.
51 pages
Cost: Free
The Disability Rights Movement: From Charity to
Confrontation
By: Doris Zames Fleischer and Frieda Zames
Available from:
Temple University Press
1601 N Broad St, USB 305, Philadelphia, PA 19122
800-447-1656
Based on interviews wiwth almost 100 activists, this book
provides a detailed hisotry of the struggle for disability
rights in the U.S. 336 pages.
Date: 2001 Cost: $24.95 paper
Dressing Tips and Clothing Resources
By: Shelly Peterman Schwarz
Making Life Easier
933 Chapel Hill Rd, Madison, WI 53711
608-274-4380; Fax: 608-274-6993
email:
help@MakingLifeEasier.com
This book offers hundreds of tips and techniques to
facilitate dressing. This books tells you how to find
clothes that best suit you, and how to modify your garments
to make them less difficult to put on and take off. You also
can learn easier ways to dress yourself or another person.
Plus, the resource section shows you where to locate more
than 100 businesses that offer specially designed or adapted
clothing for people of all ages and abilities.
Date: Updated 1997
Cost: $19.95 plus $3 postage
Easy Access Housing
By: National Easter Seal Society & Century 21 Real
Estate Corp.
312-726-6200
A pamphlet that defines adaptable and accessible housing and
provides a home adaptability and accessibility checklist.
Also provides tips for solving common accessibility problems
such as narrow doors, high thresholds and round knobs.